Hey, Lymies, I would like your help!
I want to make a video for individuals with Chronic Lyme Disease on how to avoid and/or ease summer herxing, and I want your submissions and help! How do you ease your symptoms and pain?
Leave your answers below, in my ask box, or at my email, firstname.lastname@example.org. Feel free to include other tips that help you get through daily life, any advice for others, and any quotes that help keep you inspired! Thank you!
Week in Review #7: I finally chopped off my hair!
So, I finally did it, I chopped off my hair! I donated three ponytails to Children With Hair Loss for the #HairForHazel movement, and I am in love with my new hair. Here is a comparison of the before and after!
All of my hair in the first picture isn’t even in frame! :) I am so thrilled about moving forward into my birthday week and turning 20 to have used my hair resources for a good cause for either fellow Trich individuals, or individuals with other conditions. Now onto the videos!
Monday- To My Future Children: The Most Pain I’ve Ever Felt
This video briefly discusses my journey with Chronic Lyme Disease and Endometriosis, and while I may make a separate video in the future about my diseases, I wanted to contribute something since May is Lyme Disease Awareness Month!
Wednesday Grab Bag: Six Expectations for VidCon 2014!
Since VidCon is only a month away, I wanted to make my first video about the convention and relay some of my expectations for this year’s experience. As an adult in this community, I want to make sure that I hold myself and others accountable for making the space fun, safe, and consensual!
Saturday- Week in Review: #7
Here is my first video with short hair and a recap of this busy and hectic week!
Thank you all for the love and support this week! :)
Today’s To My Future Children video discusses the most pain I’ve ever felt, and how this relates to my chronic diseases for Lyme Disease Awareness Month!
Nope can’t do this anymore. Lyme disease is literally taking over me
Do not give into this thing. Do not let this pathetic batch of bacteria tell you how to live your life. Fight back, fight back with everything you are. I know it feels like you have run out of energy and you’ve been treading water so long but your head keeps slipping beneath the surface but you though you may tire yourself out from struggling and drown you will not sink. The bravest thing I ever did was continue my life when all I wanted to do was die. It will be for you too. You keep your head up and you fight. Don’t just fight with meds and IVs and chemicals, fight with your soul. The power of positive thinking. If something isn’t working, find something else. There are hundreds of treatments beyond Western medicine that can help. Reach out there and research and find something to fit you. No one fights this disease the same way but you will find the way for you. I spent 4 years on my deathbed and I am a full functional person now. This can be you. This will be you but you need to have faith in yourself and your inner power to defeat this thing. You are stronger than any obstacle you will face in this life.
Four years ago today, I contracted two diseases, which have completely altered my life. These past few years have been unbelievable: I’ve been broken, beaten down, hopeless, lost, and dying in every meaning of the word. The monsters inside me imprisoned my true self behind bars, isolating me from the people I cared about as they worked to fulfill their goals, my body becoming nothing but their vessel in which to feed from the last of my positivity. My monsters tore me apart, inside and out, until their power brought myself and everyone around me to their breaking point.
Although these past few years have unveiled negativity, despair, and heartbreak into my life, I’ve also learned how to live, to love, and to believe in ways that I never knew before. I’ve had to drag myself up from the ground, to believe what no one else would, to hope for what seemed impossible, and to always, despite the circumstances, choose positivity and light above all.
It’s been a very long four years of relapses, surgeries, medications, restless nights, and tearful days. I’ve gone from being an innocent, athletic freshman in high school to a wheelchair-bound sophomore, a bedrest-and-electric-wheelchair-confined junior, and a walker-toting, sick-but-determined senior. But, I’ve gotten through it. I didn’t have a choice in most cases—I usually had to be positive even when I didn’t want to—but I got through it.
Now, I’m a freshman in university, and this year, my fourth year of illness with Chronic Lyme disease and Endometriosis, will be my last. No more relapses, no more antibiotics, no more side effects from expensive medications. I will be happy, and I will be healthy.
This year will be an amazing year, I just know it, and I hope 2013 brings happiness and good health for you all, no matter if you’re struggling with these diseases, other illnesses, or you’re blessed with health. This is your year to believe in yourself, just as I am working to do with myself and my dreams.
You would think by now I would be used to this fear.
New medical blog post tonight.
I’m sorry about the influx of links on my blog recently, but I have a lot of projects I’m working on. After spending quite a while away from my Lyme disease/ Endometriosis blog, I’m starting to get back into posting routinely. The link for tonight’s post can be found right here, and I will be posting a new page on the blog shortly that will have all the important posts from the past three years, so stay tuned.